Where will the money I raise go?

  • Parent support programs – Providing accurate information and support for new parents about this rare condition
  • Parent Services – opportunities for parents to connect and support each other while discussing a variety of topics
  • Adult Services Program – Online discussion groups and webinars featuring topics of interest to adults with albinism
  • Website redesign and enhancement
  • Youth Services Programs – Providing safe, healthy and fun opportunities for youth with albinism to develop lasting relationships, build confidence and create a “Tool Box” for living with albinism
  • Outreach to the medical community – NOAH attendance at medical conferences
  • Webinar Series - Monthly online session covering topics of interest to the albinism community
  • The Hermansky-Pudlak Syndrome Network – Provide information for people with the condition as well as medical professionals who treat the condition